Friday, 6 April 2012

Friday

Wednesday/Thursday/Friday Technical issues!!! I think a machine in either my room or next door interferes with the signals with the Orange dongle and my network on my phone. Exciting news... I got a new bed! Finally! Somebody was discharged last night. I had my second injection into my back on Wednesday, it went ok as they went into the same holes as before. I had had a small dose of chemo on Thursday and then my next dose is on Saturday. Tonight (Friday) at midnight until 4am I will be having a litre of sodium fluid IV'd and then again 8am-12pm on Saturday morning before my next chemo, then the chemo is IV'd. Apparently they will make sure before giving me the chemo that my kidneys are working, so If I go to the loo I have to meaure in a jug my urine... (I guess they need to see 2 litres!?!?!?!?!) knowing me I will be constantly in the loo! Dave visited yesterday as I'm still not at risk we went out for a walk-about and something to eat at the other end of the hospital. It felt like another world.... shops! Well only 2 and a hairdresser's! This place needs a Boots Chemist or a Superdrug... I know most people are here to get better etc. but it should also be about the well-being of the patients. As I have now been an in-patient I think there should be more for patients to do. My next gripe is food... just can't eat most days... fear of throwing up all the time, anti sickness helps and on Wednesday they IV'd me something new which they said would make me feel drunk... 5 mins after they gave me it .. my eyes were like saucers and I walked to the out-patients for my spinal injection.. i was floating... it was very funny. I did entertain the nurses! My hair is thinning.. always falling out but not in the clumps yet. Maybe a few moew weeks. My last chemo drug is on Sunday and then its wait and watch my blood levels. I hope to be home for next weekend as it's Dave's birthday on the 19th. Today I have a few visitors coming so I will try and finish my book before they turn up. Bye for now Ali x
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9 comments:

  1. Anonymous6 April 2012 at 12:12

    Hi Ali, it was lovely to see you today, thanks for your blog + twitter address. Your blog is really good I have just been looking through. Christy xxx

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  2. Anonymous8 April 2012 at 01:31

    Hi Ali, good to know you got a new bed, now you've got to moan a bit more about the food issues & you'll probably get another result. Nice to be able to keep in touch with your blog, it's a great idea. Thinking about you this morning & hope all goes well. Thank goodness the snow has gone, pretty but not practical.
    We're off down to Steve's in Hoddesdon to babysit this next weekend, he & Alison are 'escaping' to Copenhagen for 3 days...what with Holly & 2 dogs we'll be knackered...Val & Brian xxx

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  3. Anonymous8 April 2012 at 04:48

    Hi Ali

    Happy Easter!!!!!

    Hope you're not feeling too bad with the chemo yesterday?

    Sorry I've been a bit rubbish in the communidations dept. - needless to say work issues on the phone all morning yesterday - won't bore you! Hope to get to see you soon - Debsx

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  4. Anonymous8 April 2012 at 12:12

    Hi Ali, Happy Easter. Last chemo drug today, hope you are not feeling too bad and that your blood levels turn out to be fine and you are able to come out at the weekend. Time is flying by. I am off to meet with Angela in Italy this Friday. Can't wait for the break. I hope to be able to see you when I get back. If there is a slot in the visiting let me know? Take care and thinking of you.
    E & G
    xxx

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  5. karen8 April 2012 at 14:35

    Happy Easter bunnies, hope your new bed.is comfier, sorry i still cant visit, Ben.still poorly so.still clearing up runny doggy poo, best not too risk any chance of cross infection for you xxx

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  6. julie Poolie9 April 2012 at 03:16

    Hi Ali, Dongles or air cards as they are known here are rubbish and go on mobile phone signals i think??? Mine was rubbish. Still more importantly the bed is sorted, very important the bed and the sleep! Happy Easter, hope you got some easter eggs at least if the food is still poop, i think when you re well again you should get the patient liaison officer job!
    All is well here we've had a sunny easter and lots of walks, Dax seems to be settling down a bit maybe all his testosterone has gone after his op? Jack and Dom are good too. Only one day at work for me this week can't wait to spend time with Jack.
    I hope you have a fantastic weekend when you get home, keep up the blog I love reading it, makes me feel lke I'm a bit nearer to you and connected.
    Love, love, love to you Alison.
    J
    xxxx

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  7. Anonymous9 April 2012 at 23:54

    Hey chick, how's your Easter been? Hope you've been allowed some Easter eggs??!! Any news on when you might get home? Xx big hugs xx
    Nadine x

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  8. sophie10 April 2012 at 01:50

    so glad got new bed!!
    now they just need a new chef and your sorted ;)

    im going to open a boots for you..just need to win the lotto x

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  9. Anonymous11 April 2012 at 03:57

    Hi Ali, glad to hear you should be coming home soon for Carry On Nurse Dave to take care of you... keep ya chin up chuck! Andrew B x

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