Wednesday 22nd August

Just had a call from my nurse with the results of my PET scan and I'm in remission...!!!!!!!!!!!!!!!!! PHEW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I'll be told more on Tuesday at the appt. So glad she called and I didn't have to wait until Tuesday... !!

I have been feeling ok, tired and my legs ache and ache. I try and walk everyday, but It doesn't help! I've also started with cramp in my right foot. Hopefully I'll start driving next week.

I didn't have a good day on Monday, I spent most of the afternoon tidying and searching for my car documents (been looking for 3 months), up and down the stairs... well i over did it... and hours later my temperature started. We were at Dave's niece's 8th B-day party tea... and I had a thermometer in my mouth! It topped 38.5 in the end.. and eventually after some tablets it came down to 36.7... Dave and I were fretting as we thought we might have to visit the hospital. (Car document update... they were in a box in Dave's wardrobe!!!!!!!!!!!!!!!!!!!!!!!!!! 3 months I have spent looking for them!)

Dave has got some work now so I'm home alone for 3 days... I'm trying not to do anything...

I'll update more on Tuesday after my appt!

bye for now
Ali
x

Sunday 19th

Hi everyone,

hope you had a good weekend?

I met up with my work colleagues on Friday night for my friend Sophie's leaving do... my first night out past 9pm! I was knackered when I got home at 11pm....... nice to see everyone... and nothing had changed.... just me! Sophie had a good send off... her new career after 3 years at Uni is a Midwife.....best of luck Soph!

I'm back at hospital tomorrow for my hickman line flushing. I get my PET scan results on the 28th. Fingers crossed its good news. I have been feeling ok... eating lots...OOOPS. My sleep pattern is nearly back to normal and I have a few naps. The tiredness is the worst and my calves ache constantly. I have also been getting cramp in my right foot.

anyway I'll sign off and say good night.
xx

Monday 13th August

Sat having a blood transfusion in hospital. Been here ages as usual.

Been feeling ok since I was discharged. Lots of hospital appts keep me busy! Tomorrow I have a pet scan, fingers crossed the bit that's left is "cold" (means inactive).

X