Is going home!! After spending 92 days out of 6 months in hospital.....I'm going to enjoy a glass of fizz later. Treatment went well and I have lots of appts coming up but none that involve an overnight stay.
Thank you for all your support and messages over the last 6 months, Its nice to know i have great friends and family who are thinking of me. I'm looking forward to spending time with Dave and my family and most importantly recovering.
Bye for now
Ali x
Monday, 30 July 2012
Sunday, 29 July 2012
Sunday 29th
Still trapped!!
My levels are going up!! Phew! They were 0.01 for 6 days, I'm pleased to say today 0.1!!!!! Let's hope I'm home Tues/Wed.
I'm glued to everything Olympics.... Finally something to watch!!! The TV aerial isn't the best though, lots of interference!!
I've had more platelets this week, hopefully my body will cope better now. I was feeling very low. I have started to eat..... Drum roll....we had Wagamama's last night. I have a stocked fridge, so I'm munching my way through everything.
I'll sign off
X
My levels are going up!! Phew! They were 0.01 for 6 days, I'm pleased to say today 0.1!!!!! Let's hope I'm home Tues/Wed.
I'm glued to everything Olympics.... Finally something to watch!!! The TV aerial isn't the best though, lots of interference!!
I've had more platelets this week, hopefully my body will cope better now. I was feeling very low. I have started to eat..... Drum roll....we had Wagamama's last night. I have a stocked fridge, so I'm munching my way through everything.
I'll sign off
X
Thursday, 26 July 2012
Thursday 26th July
Day 16...
its dragging... my counts are still not showing any sign of going up. So I won't be going home as I thought tomorrow. Instead likely Monday. I'm so bored but also exhausted. Can't seem to get enough rest as the nurses are in and out of the room today, so I decided to get up, showered and dressed.
The meals on wheels is going well... although running out of ideas of what to eat!! I've lost around 6 kilos again... due to lack of appetite from the chemo. I'm just hating this hospital at the moment. Even the cleaner had a good moan about the food to me... !!
Just got to keep it altogether for a 4 or 5 more days and then I'm free!
x
its dragging... my counts are still not showing any sign of going up. So I won't be going home as I thought tomorrow. Instead likely Monday. I'm so bored but also exhausted. Can't seem to get enough rest as the nurses are in and out of the room today, so I decided to get up, showered and dressed.
The meals on wheels is going well... although running out of ideas of what to eat!! I've lost around 6 kilos again... due to lack of appetite from the chemo. I'm just hating this hospital at the moment. Even the cleaner had a good moan about the food to me... !!
Just got to keep it altogether for a 4 or 5 more days and then I'm free!
x
Monday, 23 July 2012
Monday Day 13 - part 2
Hi,
Another update:
CT scan results show a small amount of lymphoma still there but majority has gone. He didn't seem worried as he said most patients end up with a little bit left.
They want to give me a PET scan in 3-4 weeks which is a more in depth scan and possible liver biopsy just to check what's left. I'll also have a repeat CT scan in 3 months.
With regards to my hepatitis, I'll go back to seeing liver my consultant again. But I'll also be under heamotology who will be monitoring my blood for it flaring up.
I'll be coming in as a day patient for follow up chemo, just 2 sessions in August. I'll be having platelets today. My neutrophil levels are 0.01 today, so I'm not going anywhere just yet, they need to be 0.3!!!!
So good news, but before I open the fizz just want to see what the biopsy results are.
Bye for now
Ali
X
Another update:
CT scan results show a small amount of lymphoma still there but majority has gone. He didn't seem worried as he said most patients end up with a little bit left.
They want to give me a PET scan in 3-4 weeks which is a more in depth scan and possible liver biopsy just to check what's left. I'll also have a repeat CT scan in 3 months.
With regards to my hepatitis, I'll go back to seeing liver my consultant again. But I'll also be under heamotology who will be monitoring my blood for it flaring up.
I'll be coming in as a day patient for follow up chemo, just 2 sessions in August. I'll be having platelets today. My neutrophil levels are 0.01 today, so I'm not going anywhere just yet, they need to be 0.3!!!!
So good news, but before I open the fizz just want to see what the biopsy results are.
Bye for now
Ali
X
Monday... Day 13
I had my scan last Thursday, not sure on results as yet. Finally came off the horrible anti biotics over the weekend. I hope my stomach returns to normal. Hopefully I'll also have my hickman line taken out this week, I'll be able to use my jacuzzi bath at home now.
I'm 5% battery use on the iPad so I had better publish my post.
I've got a few more things to write about so I'll let this charge and log on later.
Bye for now
Ali
X
I'm 5% battery use on the iPad so I had better publish my post.
I've got a few more things to write about so I'll let this charge and log on later.
Bye for now
Ali
X
Sunday, 15 July 2012
Sunday
I thought I should update....
Been in since Wednesday last week, chemo wasn't started until Friday. Since then I've developed a bug in my hickman line, my temperature has been sky high for 3 days.. And then up and down! I had a bit of a cold before coming which hasn't helped matters.
I'm just having 2 pints of blood followed by more chemo and I'll be on 2 types of anti-biotics until infection has gone.
I had to cancel visits from friends this weekend, just wasn't upto it. I have been running to the loo or being totally out of it. The doctor said I'm looking much better, which is good news!!
Bye for now
Ali x
Been in since Wednesday last week, chemo wasn't started until Friday. Since then I've developed a bug in my hickman line, my temperature has been sky high for 3 days.. And then up and down! I had a bit of a cold before coming which hasn't helped matters.
I'm just having 2 pints of blood followed by more chemo and I'll be on 2 types of anti-biotics until infection has gone.
I had to cancel visits from friends this weekend, just wasn't upto it. I have been running to the loo or being totally out of it. The doctor said I'm looking much better, which is good news!!
Bye for now
Ali x
Wednesday, 11 July 2012
Wednesday
Hi,
they have a bed ready for me.... going down later on... They wanted me to come in at 5pm... I basically told them to get lost and I'll be there at 7pm... you probably think this is harsh... but first night your always sat about.....
Bye for now
Ali
x
they have a bed ready for me.... going down later on... They wanted me to come in at 5pm... I basically told them to get lost and I'll be there at 7pm... you probably think this is harsh... but first night your always sat about.....
Bye for now
Ali
x
Monday, 9 July 2012
Monday 9th July
Not much going on until I get my bed on the ward this week. I have to start ringing tomorrow. I have been eating and eating... stocking up for the chemo weight loss!
I bought a new wig last week, very similar to the one I have but a little easier to style as the fringe is shorter. My eyebrows and eyelash's have all dropped out now. I bought a brow stencil kit to draw them back in.... Hopefully a few weeks after my next and final treatment they will start to grow back. I look very strange... I'm sure people must look at me and think... something is missing.......!!!!!
The weather has been dreadful so I haven't had any opportunity to catch some rays... Hopefully in August summer will arrive!
I hope your all well and not working too hard! Some great NEWS....My cousin is going to be running in the Great North Run, her training starts this week in Dubai... good luck Ang in the 42*C heat!!!! If you haven't seen the link on facebook here it is for you all.
http://www.justgiving.com/angela-rollinson0
Angela will be running for the Leukaemia & Lymphoma Research Charity based in London. They are a charity who fund trials and research on blood cancers.
http://leukaemialymphomaresearch.org.uk/
Please help us achieve a great total for the charity!!
Bye for now
Ali
x
I bought a new wig last week, very similar to the one I have but a little easier to style as the fringe is shorter. My eyebrows and eyelash's have all dropped out now. I bought a brow stencil kit to draw them back in.... Hopefully a few weeks after my next and final treatment they will start to grow back. I look very strange... I'm sure people must look at me and think... something is missing.......!!!!!
The weather has been dreadful so I haven't had any opportunity to catch some rays... Hopefully in August summer will arrive!
I hope your all well and not working too hard! Some great NEWS....My cousin is going to be running in the Great North Run, her training starts this week in Dubai... good luck Ang in the 42*C heat!!!! If you haven't seen the link on facebook here it is for you all.
http://www.justgiving.com/angela-rollinson0
Angela will be running for the Leukaemia & Lymphoma Research Charity based in London. They are a charity who fund trials and research on blood cancers.
http://leukaemialymphomaresearch.org.uk/
Please help us achieve a great total for the charity!!
Bye for now
Ali
x
Sunday, 1 July 2012
Sunday...
Hi everyone,
Totally forgot to update my blog on Friday... I was finally sent home!!
Been shopping and trying to be normal over the weekend. My legs are aching so best to take it easy tomorrow. I'm also tired as it takes me awhile to get used to my bed.... and Dave's snoring!!!
Sorry this is so short... nothing much to update on...
Bye for now
Ali
x
Totally forgot to update my blog on Friday... I was finally sent home!!
Been shopping and trying to be normal over the weekend. My legs are aching so best to take it easy tomorrow. I'm also tired as it takes me awhile to get used to my bed.... and Dave's snoring!!!
Sorry this is so short... nothing much to update on...
Bye for now
Ali
x
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