Hi everyone,

I haven't updated for awhile... sorry!! Decided to log onto today and let you all know what has been happening in my world.

My liver disease has been flaring up and I'm now on steroids. Hopefully for not too long. My appetite is terrible!! I will go back on the azathioprine in a few weeks. I had an appt with the IVF clinic and once my liver settles it will be back on with treatment. Exciting times for us.

I celebrated my 1 year in remission on August 22nd. Although my chemo ended end of July 2012 I was in and out having various tests and scans. My health is better and I have regular blood tests at the hospital. I'm under the radar now and everything is being monitored.

I'll sign off and promise to keep updating this!!

xx

Update...28th April 2013

I was just thinking the other day that I haven't been on my blog and updated and sort of closed my cancer chapter..

Well here goes since my post last August 2012... I have had lots of appts in and out of doctors and hospital clinics. Please to say I'm doing well and every day I feel so much better. The cancer must have been growing in me for years.

As you know Dave and I got married. It was my year anniversary of the first chemo, crazy where 365 days went!! We had a lovely day and I managed stay awake until 2am!! We flew to Paris on April 1st for 5 days. We walked and walked to see the sights.

My hair is a nightmare.. very curly and worse on windy days! I know it will grow but its just taking awhile!! Short hair isn't really me. I know everyone else likes it but I just feel weird!

I recently took voluntary redundancy and have now decided to take up a course in teaching assistant/ This starts in September and I'm looking forward to a new start in something rewarding!!! I have found a school willing to take me on one day a week voluntary. It will be great to experience life in the class room.

I hope your all well and I'll sign off and perhaps update again sooner than last time.

xx

Our first day in Paris

Our love lock on the Paris bridge

In the sun

We love Paris!

Just before we got married

On the steps at the Leeds Town Hall

Trying to run for our photos

Signing the book

Wednesday 22nd August

Just had a call from my nurse with the results of my PET scan and I'm in remission...!!!!!!!!!!!!!!!!! PHEW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I'll be told more on Tuesday at the appt. So glad she called and I didn't have to wait until Tuesday... !!

I have been feeling ok, tired and my legs ache and ache. I try and walk everyday, but It doesn't help! I've also started with cramp in my right foot. Hopefully I'll start driving next week.

I didn't have a good day on Monday, I spent most of the afternoon tidying and searching for my car documents (been looking for 3 months), up and down the stairs... well i over did it... and hours later my temperature started. We were at Dave's niece's 8th B-day party tea... and I had a thermometer in my mouth! It topped 38.5 in the end.. and eventually after some tablets it came down to 36.7... Dave and I were fretting as we thought we might have to visit the hospital. (Car document update... they were in a box in Dave's wardrobe!!!!!!!!!!!!!!!!!!!!!!!!!! 3 months I have spent looking for them!)

Dave has got some work now so I'm home alone for 3 days... I'm trying not to do anything...

I'll update more on Tuesday after my appt!

bye for now
Ali
x

Sunday 19th

Hi everyone,

hope you had a good weekend?

I met up with my work colleagues on Friday night for my friend Sophie's leaving do... my first night out past 9pm! I was knackered when I got home at 11pm....... nice to see everyone... and nothing had changed.... just me! Sophie had a good send off... her new career after 3 years at Uni is a Midwife.....best of luck Soph!

I'm back at hospital tomorrow for my hickman line flushing. I get my PET scan results on the 28th. Fingers crossed its good news. I have been feeling ok... eating lots...OOOPS. My sleep pattern is nearly back to normal and I have a few naps. The tiredness is the worst and my calves ache constantly. I have also been getting cramp in my right foot.

anyway I'll sign off and say good night.
xx

Monday 13th August

Sat having a blood transfusion in hospital. Been here ages as usual.

Been feeling ok since I was discharged. Lots of hospital appts keep me busy! Tomorrow I have a pet scan, fingers crossed the bit that's left is "cold" (means inactive).

X

Monday 30th july

Is going home!! After spending 92 days out of 6 months in hospital.....I'm going to enjoy a glass of fizz later. Treatment went well and I have lots of appts coming up but none that involve an overnight stay.

Thank you for all your support and messages over the last 6 months, Its nice to know i have great friends and family who are thinking of me. I'm looking forward to spending time with Dave and my family and most importantly recovering.

Bye for now
Ali x

Sunday 29th

Still trapped!!

My levels are going up!! Phew! They were 0.01 for 6 days, I'm pleased to say today 0.1!!!!! Let's hope I'm home Tues/Wed.

I'm glued to everything Olympics.... Finally something to watch!!! The TV aerial isn't the best though, lots of interference!!

I've had more platelets this week, hopefully my body will cope better now. I was feeling very low. I have started to eat..... Drum roll....we had Wagamama's last night. I have a stocked fridge, so I'm munching my way through everything.

I'll sign off

X