Thursday 1st March - Getting the diagnosis

Dear All,


I will try an update this as and when I have news, hopefully whilst I'm in hospital aswell.


I'm finding it hard work letting every know whats going on. I don't want to put it on Facebook as some of the things I will write about are very personal.


So are you ready.....here goes with my blog


Had a doctors appt today with my consultant who told me that after a week testing the sample they were still not conclusive on the sub-type of the Lymphoma.


So to cut a long story short they are going to be me on higher grade of chemo. Which involves lengthy stays in hospital at a time. I will be given my own en-suite room on a ward with a fridge and a T.V. I can take some personal things in to decorate the room, to make it more comfortable for me.


I was given a schedule at the appt detailing what happens on Day 0 - Day 15. Different types of chemo given on different days. I will be in hospital roughly every 3 weeks for 2 weeks.. some weeks will be less or more depending on how I feel during the 2 week treatment weeks. (All a bit confusing). On some days my red blood cells will drop and I will need to be monitored for infection, on these days its only close family that can visit. My immune system will be all over the place.


I'm happy to final start something as the symptons of the Lymphoma are not very pleasant. We are just waiting on a consultant from the fertility dept to get in touch as I'd like to freeze my eggs before treatment. If this is going to take a few weeks the doctors aren't really prepared to wait as they want to get on with treatment ASAP.


Well I had better post... hope you enjoy reading and find it useful. Sorry for spelling mistakes and grammar!


Love
Ali x